My Treatment Plan
Be Aggressive, B-E Aggressive
Chemo for Ewing's sarcoma is aggressive and fairly effective. That's the good thing about it. It shrunk my tumor by approximately 90% and made it possible for surgery.
On the flip side, the chemo is aggressive and effective, in the worst possible ways. Looking back on it, I can’t wrap my head around how I got through it.
Do not let that be discouraging to you. Being aware of the treatment, side effects, and possible complications will help you put what you're experiencing into perspective.
My expectations were so misaligned with reality. I had no personal knowledge or framework from which to work with.
Chemo
January - August, 2021
Cycle 1
Inpatient Chemo
Four to five days of inpatient (in the hospital) chemo delivered via IV.
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Ifosfamide for one hour daily
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Etoposide for one hour daily
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Mesna (reduces inflammation of the bladder) around the clock
One week off.
Cycle 2
Outpatient Chemo
One day (6-8 hours) of outpatient (at an infusion facility) chemo delivered via IV.
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Doxorubicin a.k.a. the red devil for 15 minutes
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Vincristine for one hour
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Cyclophosphamide for one hour
One week off.
The chemo protocol for Ewing sarcoma is alternating cycles 1 and 2 for a total of 14 cycles, over approximately 9-10 months.
My Chemo Experience
