My Treatment Plan
Be Aggressive, B-E Aggressive
Chemo for Ewing's sarcoma is aggressive and fairly effective. That's the good thing about it. It shrunk my tumor by approximately 90% and made it possible for surgery.
​
On the flip side, the chemo is aggressive and effective, in the worst possible ways. Looking back on it, I can’t wrap my head around how I got through it.
​
Do not let that be discouraging to you. Being aware of the treatment, side effects, and possible complications will help you put what you're experiencing into perspective.
​
My expectations were so misaligned with reality. I had no personal knowledge or framework from which to work with.
Chemo
January - August, 2021
Cycle 1
Inpatient Chemo
Four to five days of inpatient (in the hospital) chemo delivered via IV.
-
Ifosfamide for one hour daily
-
Etoposide for one hour daily
-
Mesna (reduces inflammation of the bladder) around the clock
One week off.
​
Cycle 2
Outpatient Chemo
One day (6-8 hours) of outpatient (at an infusion facility) chemo delivered via IV.
-
Doxorubicin a.k.a. the red devil for 15 minutes
-
Vincristine for one hour
-
Cyclophosphamide for one hour
​
One week off.
The chemo protocol for Ewing sarcoma is alternating cycles 1 and 2 for a total of 14 cycles, over approximately 9-10 months.
My Chemo Experience
